Category Archives: Dialysis cruise

Dialysis, Carpel Tunnel and Jogging

Well, it’s been two weeks since the carpel tunnel surgery, and I now have both hands mostly functional.

I have become quite adept at waterproofing my hand and wrist with a plastic bag and a rubber band (I tend to go for the bags you get off the roll when buying fruit and vegetables – they are a good size, tend to stay waterproof and when put on inside out, are quite clean).  Accompanying this skill has been one-handed showering (and other toilet activities).

However, now that I’m back to two hands, these skills may well fade away.

Carpel Tunnel surgery scar

The bandage came off after three days and the stitches out after two weeks (two days ago).  The cut looks clean and dry and not too ugly, though a little wider than I expected.  It still feels tight, even without the stitches, and both a little numb and sensitive to touch, but otherwise quite functional.

I must say that while the carpel tunnel has not yet departed, my hand feels quite different.  It still pretty well locks up during the night and I gradually get it opening and closing with a little exercise and massage.  The touch is also different but better: still pins and needles but not so much numbness.  Flexibility has improved: I had a big moment yesterday, when with some concentration, I was able to button up my left sleeve, all by myself!  Some people I have spoken to say that recovery can be almost instantaneous; others that it can take up to a year.  I think maybe the second opinion is the more likely.

The surgeon said that I should exercise it as much as possible, opening and closing it into a fist.  Eventually I should advance to a stress ball.  This should stop it locking up in the open position.

For the first time in weeks I went for a run yesterday morning. This is a reflection of how well I feel at the moment. My cold/flu is gone, I’m off painkillers.  The BigD is effective and uneventful:  I’m back to reading, practicing a little Mandarin and in the last hour, watching a video (currently Primeval, which is quite diverting).

I have a range of courses for jogging, starting with the Short and Sweet (twice round the bed), the Getting Back Into It (once round the block – about 10 minutes) and the Just Enough (two blocks and two hills – about 25 minutes). I was feeling pretty up for it yesterday, so I did the Just Enough.  It was a triumph.  I really enjoyed my breakfast: it tastes so much better when I have been so virtuous!  The only down side is that now I have to do at least the same next time, maybe more.

One interesting thing came from the run. Before the surgery, I would run about 10 minutes and my hand would go completely numb.  This time I decided to exercise it as I ran, stretching it flat, then making a fist as I powered (trotted) along.  Then something interesting happened. My body decided to synchronise both activities.  I found that about 10 minutes into the run, my hand would close as I breathed out and open as I breathed in.  It was quite strange, because it felt like I was squeezing a little phantom pump that controlled my breathing.  Squeeze faster, breathe faster; squeeze slower, breathe slower.  I quite enjoyed it, jogging along in my own private world controlling my breathing with my hands (my other had joined in by this stage).

I’m looking forward to my next run, just to see if I can do it again.

Isn’t it strange what you can discover when you do something different?  Whether the difference is forced upon you, or you create it yourself, there’s always something if you take the time to notice it.

Guest Post: Our Holiday Dialysis cruise to Vanuatu

This guest post is from a good friend and BigD club member, Max Smith.  Max and his wife Carol went on a holiday dialysis cruise last October.  Read on…

It was in Sydney on Sunday 12 October 2008, we boarded the P&O ship Pacific Dawn to begin the trip of a life-time, an eleven night south pacific cruise to Vanuatu and a number of small South Pacific islands.

P&O Ship Pacific Dawn

P&O Ship Pacific Dawn

Prior to my commencing dialysis Carol and I had travelled to many parts of the World but our most memorable holidays were those we spent cruising. We both thought those holidays were over for ever until I joined the Dialysis Escape Line Australia (DELA).

I applied to travel on a cruise to Vanuatu, having read about it in one of DELA’s brochures posted to home and the dialysis unit. After a quick process our application was successful and in early October our tickets arrived. My dialysis requirements had been faxed, by the NUM of my unit, to Nancy in South Australia. Everything was set to go. Whilst I have dialysed away from my unit in the past, I was still apprehensive about the conditions for dialysis onboard the Pacific Dawn.

From the time we got on the plane everything was extremely well planned by the DELA team. The coach transfer from our plane to the ship was well done. We had priority boarding so there was no need to stand in long queues. This was a blessing for me because I had experienced oppressive conditions on more than one previous occasion.

We were onboard the Pacific Dawn by 11:30am after travelling from Melbourne. Lunch was available in the café bistro immediately and we settled into shipboard life very quickly. At 2:00pm I went to meet the Nephrologist (Dr Alan Parnham) on board for the cruise and found four brand new dialysis machines up and running, connected to a portable RO water supply.  Five new machines had been purchased with money raised by DELA through donations and fund raising functions.  I was amazed that so much work had been done so quickly.

All the mod cons: dialysis machines, comfy chairs, port holes...All the mod cons: dialysis machines, comfy chairs, port holes…

It was here I met the technician Joel; he was onboard to look after all the machines for the voyage.  Joel is a very capable young man and very friendly. Enzo was there along with the two nurses, Di and Tony, who would look after the 12 dialysis patients.  I later met the NUM Mada Brinkman a very warm and friendly person.  The entire nursing staff were very capable and made dialysis onboard the ship as good as I would normally have.

The ship sailed at 4:00pm and we glided through Sydney harbour, under the bridge and past the Opera House.  The sun was shining and it was a wonderful opportunity to take photos and video to show family at home.

We had three straight days at sea with gentle winds and plenty of sunshine before arriving at our first port Luganville.  It was here that we first saw rain.  At times it was torrential and then it would stop and the sun would come out.  The weather did not stop the locals from setting up stalls beside the ship.  There were dancers and singers as well as the usual hats, tee-shirts and wood carvings.  The ship’s daily news paper advised on what was suitable to bring back on board.  Some groups went on tours around the island by car, others managed to find high quality restaurants to have lunch.

Our second stop was Wala, a small sandy atoll with beautiful clear crystal blue water like you see in all the brochures.  The water temperature was about 24°C and many people went snorkeling.  The locals had small outrigger canoes to take visitors for a ride and the ladies had their hair braided for a small fee.

Getting ready for a run ashore...

Getting ready for a run ashore...

A visit to Port Villa was next. The temperature was in the low 30s and humidity was 90%. The locals were lined up in vans to take people on tours around this beautiful area.  One of the most spectacular sites to visit is the cascade waterfalls about 45 minutes drive from the ship. Duty free shopping is a must here particularly for liquor.

Mystery Island and the Isle of Pines were wonderful but what struck me most was the hospitality of Enzo his wife Maria and his team. We had dinner on our own some nights but frequently chose to dine with all the others because of the family like atmosphere.

My BigD room with an everchanging view!

My BigD room with an everchanging view

Mada and her nursing staff made everyone feel comfortable and the dialysis sessions of a morning included my choice of meal for breakfast along with anything else required.  Dr Alan Parnham made sure everyone was well and dialysed appropriately.  He was always available for treatment. We made friends with another couple who dialysed at home and we shared many experiences.  We will continue to stay in contact with this couple and others.

On the cruise you can be as busy or as quiet as you like and there is no pressure to do either.  The food was wonderful with plenty of choice for the fussiest eaters.  It is a wonderful holiday for the patient and partner, everything is done for you.  Once you unpack you cases you can sit back and be waited on.

On leaving the ship back in Sydney the priority treatment continued through immigration and customs before meeting Nancy who was waiting to board the next cruise with 12 new patients.

I can’t speak highly enough about the way in which we were treated.  For Carol and me it was our dream holiday come true.  It just proves that life can continue to be full and enjoyable even on dialysis.  You don’t have to stay at home forever.  Thank you to everyone involved for making this opportunity possible.  Our trip of a lifetime lived up to our expectations thanks to DELA.

Max Smith

Dawn